The ApplyIT Study and other transition studies point to goal setting as a vital ingredient for making transition planning relevant, meaningful and tailored to an individual youth. Surprisingly, many participants and their families felt that youth were too young to start practicing self-management for transition planning. While we do not have any data on the youth who completed time 1 data, it can be assumed that likely many youth who opted not to participate also did not feel they were sick enough to need an intervention. Those who didn’t use the app commended the resource yet they perceived their health concerns as “not serious enough” and themselves as “not sick enough”. Qualitative data from the intervention group indicated that many youth became aware of the areas of self-management that they need to focus on. Our team learned many valuable lessons from this study, including but not limited to the following: Buy-in from youth around the importance of transition preparation/goal setting. It was evident, however, that recruitment into the study would be the largest barrier to a successful RCT (only 39 of the expected 100 participants were recruited). Our team was successful in achieving this outcome with 36 out of 39 participants completing all 3 time points (92% retention). The primary feasibility outcome examined whether a 90% retention could be attained. All participants will complete a 3- and 6-month follow-up visit to repeat the baseline measures. Following baseline measures, participants were randomized into 2 groups: receive the app with monthly support or continue with usual care. 39 participants between the ages of 14-18 with a chronic health condition (neurodevelopmental or other chronic), at McMaster Children’s Hospital in Ontario completed the baseline visit.
With the ApplyIT Study wrapping up March 2019, some preliminary findings have been collected.
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